The Use of Personal Health Information for Research: A Tale of Three Provinces

[This is part one in a two-part series. Part II can be found here.]

Date: February 1st 2012 from 12pm to 1:30pm EST

Abstract: This webinar will review the requirements for the use of personal health information for research purposes. The webinar will cover such topics as consent, the use of de-identified vs. identifiable information, research ethics board approvals, research agreements and the distinction between the “use” and “disclosure” of personal health information for research purposes. While the webinar will focus on the requirements set out in Ontario’s Personal Health Information Protection Act, 2004 (PHIPA), it will also examine the legislative requirements in the provinces of Alberta and British Columbia.

Speaker: Anita Fineberg, LL.B., CIPP/C

Anita Fineberg, LL.B., CIPP/C is a sole practitioner and consultant specializing in the areas of privacy, access to information, data security and information management issues. She focuses on health information privacy and the use of health information in the development of electronic medical and health records.

Anita advises private and public sector clients on compliance with PIPEDA, PHIPA, other Canadian provincial privacy legislation, health information privacy requirements, global data protection laws, as well as on the management of the access to information process under FIPPA and comparable legislation in other provinces. She has extensive experience in drafting and negotiating agreements for the health sector as well as contracts related to data uses, security and confidentiality. She also assists clients in the development of privacy compliance programs, including policies, procedures and training. Anita provides emerging companies with advice on online privacy policies, Terms of Use and the rules governing the use of user-generated content on websites.

Anita is a member of the access and privacy and advocacy sections of the Canadian Bar Association and the privacy, health, IT and administrative law sections of the Ontario Bar Association. She is also a member of the Canadian Association of Management Consultants.

She holds an LL.B degree from the University of Toronto and is a Certified Information Privacy Professional/Canada. Anita is a frequent speaker, workshop leader and author on privacy and information security.

Download the slides here.

Link to Debra Grant’s presentation, here.

Link to Part II in this series, here.