The Case for De-identifying Personal Health Information

Date: January 26 2011 from 12pm to 1pm EST

Abstract: De-identification is one of the methods that can be used for disclosing health information while protecting the privacy of individuals. This webinar will present the most comprehensive case for using de-identification today as the method of choice for disclosing health information. We will examine consent options, public opinion and trust, actual behaviours of data custodians, alternative technical solutions, and the financial benefits of de-identification. The specific situations where de-identification is appropriate are discussed with examples. A detailed report containing the underling analysis and extensive review of the evidence is also being concurrently released with the webinar

Speaker:  Khaled El Emam, CHEO Research Institute

Biography:  Khaled is an Associate Professor at the University of Ottawa, Faculty of Medicine and the School of Information Technology and Engineering, a senior investigator at the Children’s Hospital of Eastern Ontario Research Institute, and a Canada Research Chair in Electronic Health Information at the University of Ottawa. His main area of research is developing techniques for health data anonymization. Previously Khaled was a Senior Research Officer at the National Research Council of Canada, and prior to that he was head of the Quantitative Methods Group at the Fraunhofer Institute in Kaiserslautern, Germany. He has (co)-founded two companies to commercialize the results of his research work. In 2003 and 2004, he was ranked as the top systems and software engineering scholar worldwide by the Journal of Systems and Software based on his research on measurement and quality evaluation and improvement, and ranked second in 2002 and 2005. He holds a Ph.D. from the Department of Electrical and Electronics, King’s College, at the University of London (UK).

Download the slides here.

Link to Research Article here.