De-Identification of Health Data under HIPAA: Potential Paths Forward

Date: November 30th 2011 from 12pm to 1pm EST

The standards and policies for de-identified data under the HIPAA Privacy Rule have long been the subject of much debate, and the Supreme Court’s decision in Sorrell v. IMS Health Inc et al added fuel to an already simmering fire. The Center for Democracy & Technology’s Health Privacy Project recently held a workshop to consider the the state of the evidence on the efficacy of de-identification and whether current policies are adequate to meet the challenges. In this webinar, we will discuss some of the promising policy solutions discussed at that workshop, including express prohibitions on re-identification, placing limits on use of the safe harbor methodology, creating an infrastructure for objective review of statistical de-identification methodologies, and endorsing Centers of Excellence for entities/companies that perform consistently effectively health data de-identification.

Speaker: Deven McGraw , Director of the Health Privacy Project at the Center for Democracy and Technology

Biography: Deven McGraw is the Director of the Health Privacy Project at CDT. The Project is focused on developing and promoting workable privacy and security protections for electronic personal health information.

Ms. McGraw is active in efforts to advance the adoption and implementation of health information technology and electronic health information exchange to improve health care. She was one of three persons appointed by Kathleen Sebelius, the Secretary of the U.S. Department of Health & Human Services (HHS), to serve on the Health Information Technology (HIT) Policy Committee, a federal advisory committee established in the American Recovery and Reinvestment Act of 2009. She chairs the Committee’s Privacy and Security Workgroup (the “Tiger Team”) and serves as a member of its Meaningful Use and Information Exchange Workgroups. She also served on the Policy Steering Committee of the eHealth Initiative and now serves on its Leadership Council. She is also on the Steering Group of the Markle Foundation’s Connecting for Health multi-stakeholder initiative.

Ms. McGraw graduated magna cum laude from the University of Maryland. She earned her J.D., magna cum laude, and her L.L.M. from Georgetown University Law Center and was Executive Editor of the Georgetown Law Journal. She also has a Master of Public Health from Johns Hopkins Bloomberg School of Hygiene and Public Health.

Download the slides here.

Download the related article here.