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Anita Fineberg and Khaled El Emam (Anita Fineberg & Associates Inc. + University of Ottawa): PHIPA and Public Health: Critical Personal Health Information Issues for Pandemic Planning and Management (video of presentation at the PHIPA Summit, Toronto, 26 November 2009).





Brenda Wilson (University of Ottawa): Psychological impacts of pre-dispositional genetic testing: Possible lessons for direct to consumer advertising (video of presentation at the Electronic Health Information and Privacy conference, Ottawa, 19 November 2009).





Rose Geransar and Farah Mohamed (University of Calgary, University of Alberta): Online direct-to-consumer marketing for genetic testing: Credibility markers, consent and privacy provisions (video of presentation at the Electronic Health Information and Privacy conference, Ottawa, 19 November 2009).





Mike Spear (Genome Alberta): Meome, myome, let's share our genome (video of presentation at the Electronic Health Information and Privacy conference, Ottawa, 19 November 2009).





Christopher Cassa (Harvard-MIT Division of Health Sciences and Technology): Privacy implications for rare mutation data (video of presentation at the Electronic Health Information and Privacy conference, Ottawa, 19 November 2009).





Murat Kantarcioglu (University of Texas at Dallas): A privacy preserving framework for integrating, storing and querying biological data (video of presentation at the Electronic Health Information and Privacy conference, Ottawa, 19 November 2009).





Bradley Malin (Vanderbilt University): Surveying the landscape of privacy in clinical genomics research databases (video of presentation at the Electronic Health Information and Privacy conference, Ottawa, 19 November 2009).





Fred Bieber (Harvard Medical School): Privacy and policy considerations in the use of DNA data banks (video of presentation at the Electronic Health Information and Privacy conference, Ottawa, 19 November 2009).





Mark Rothstein (University of Louiseville School of Medicine): Reconsidering privacy in the genomic era (video of presentation at the Electronic Health Information and Privacy conference, Ottawa, 19 November 2009).





Khaled El Emam (CHEO Research Institute & uOttawa): Secondary Uses of Patient Information - Can we Protect Confidentiality? (podcast of an interview with Dr. Alan Brookstone of Canadian EMR in July 2009).





Khaled El Emam (CHEO Research Institute & uOttawa): Risk-based Data Sharing Agreements (video showing how to automatically generate custom data sharing agreements using the Privacy Analytics tool, July 2009).





Khaled El Emam (CHEO Research Institute & uOttawa): Maximizing Data Value During De-identification. (video showing how to calibrate the de-identified data to meet the needs of the data recipient, a presentation at CHEO in June 2009).





Khaled El Emam (CHEO Research Institute & uOttawa): The De-identification of Correlated Variables (video showing how to de-identify correlated variables using the Privacy Analytics tool, a presentation at CHEO in June 2009).





Khaled El Emam (CHEO Research Institute & uOttawa): De-identification of registry data. (video of a demo of our de-identification engine being used on a cross-sectional registry data set).





Khaled El Emam (CHEO Research Institute & uOttawa): The De-identification of Clinical Data (slides from presentation at Vancouver Coastal Health, Vancouver, May 2009).





Khaled El Emam (CHEO Research Institute & uOttawa): The Adoption of Personal Health Records (slides from presentation at the Conference Board of Canada, Ottawa - April 2009).





Khaled El Emam (CHEO Research Institute & uOttawa): The Use of EDC in Canadian Clinical Trials (slides from presentation at the CHEO Research Rounds, Ottawa - April 2009).





Khaled El Emam (CHEO Research Institute & uOttawa): De-identifying clinical Data (video of presentation at Vancouver Coastal Health - May 2009).





Anita Fineberg (Anita Fineerg & Associates Inc.): Secondary Uses and Disclosures of Personal Information: The Canadian Legal Framework (video of presentation at the IAPP 2009 Conference, session on secondary use, Toronto - April 2009).





Debra Grant (Office of the Information and Privacy Commissioner / Ontario): Privacy in the context of the secondary use of personal health information (video of presentation at the IAPP 2009 Conference, session on secondary use, Toronto - April 2009).





Khaled El Emam (CHEO Research Institute & uOttawa): Sharing Sensitive Data (video of presentation at the Privacy by Design conference, Toronto - January 2009).





Khaled El Emam (CHEO Research Institute & uOttawa): De-identifying Data for Secondary Use (video of presentation at ICES, Toronto - January 2009).





Khaled El Emam (CHEO Research Institute & uOttawa): De-identifying Data for Research (recorded presentation at UHN, Toronto - November 2008).





Khaled El Emam (CHEO Research Institute & uOttawa): Managing Re-identification Risk. (recorded lecture - October 2008).





Khaled El Emam (CHEO Research Institute & uOttawa): International Quality Benchmarks. (recorded lecture - May 2006).





Chantelle Garritty and Khaled El Emam (CHEO Research Institute & uOttawa): Who's Using PDAs? Estimates of PDA Use by Health Care Providers: A Systematic Review of Surveys. (recorded lecture - May 2006).






3 March 2010
A study just published examines the leaks of PHI from peer-to-peer file sharing program users in the US and Canada, and compares that to leaks of financial information. The article also examines the ethical issues in collecting personal information from the Internet without consent, and what the considerations should be.




1 March 2010
This one day event on April 6th in Ottawa examines issues around the need and mechanisms for the integration of patient information into a single record, and how to take account of patients' needs while doing so. It is a unique opportunity to understand the patients' perspectives in the efforts to deploy EMRs and EHRs.




12 February 2010
A new article in Healthcare Information Management and Communications describes the privacy risks to patients from inadvertant and deliberate disclosure of health information. Because the frequency and magnitude of these disclosures is expected to increase, the articles calls for more meaningful patient engagement in developing rules on the collection, use, and dislcosure of health information and the incorporation of the principles of Privacy by Design in the development of new systems.




11 January 2010
In conjunction with the Canadian AI Conference, we are organizing a workshop focusing on the theory, development, and application of intelligent methods for protecting the privacy of personal information when disclosed for secondary purposes. This will be held on May 30th 2010 in Ottawa.



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This page last modified on:
Wed Mar 10 2010